Tag Archive | cerebral palsy

Rain, Rain, Go Away…

At last April is here. Spring! Except here, spring is rather slow to get going, thanks to all the rain and wind and snow. Even this past weekend, Easter (I hope you all had an enjoyable one), parts of the UK experienced a white Easter, though not for the first time. Here where I am I the West Country, we didn’t have snow but it rained like it was never going to stop. Which means… (click here to read on)

 

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George’s First Steps: A Special Message

Wanted share this is a special message from George:

Thank you Dr TS Park and Dr Matthew Dobbs for giving me the chance to stand on my feet and be like my friends xxx

Enjoy the video people: www.youtube.com/watch?v=KgXU_sjw7Z8

George has only just learnt to push his walker himself after 6.5 months of hard, hard work so what he will achieve in this next 6 months is too exciting to think about. To think that when he was born his parents found out he had quadriplegic cerebral palsy doctors said he would never walk, talk or know who anyone was…….well hasn’t he proved them wrong!!!

 

GEORGE’S FIRST STEPS: UPDATE

As promised, here is an update on the progress of our little George since his life-changing SDR operation to help him cope with cerebral palsy that took place in America six months ago.

Six months? Yes, it’s really been that long and what a difference to his and his parents lives. He still needs help when using his walker as it is heavy for him, but each day he gets stronger with the physio and exercises that must continue daily. Each day there is improvement, and like all children, he gets his off days but he comes bouncing back. To think, six months ago he couldn’t sit unaided, spent a lot of his time on the floor, shuffling on his stomach to get anyway, and struggled to do the simplest of tasks we take for granted. Not any more. He’s gained so much independence, even having friends from school in to play and taking part in the school nativity play at Christmas; his speech is improving, and his cheekiness and sense of fun is as wonderful as ever, if not more so.

Rather than go on listing his achievements, his proud parents have put together a video which I hope you’ll take a few minutes of day to look at here. I’ve watched it several times and still my eyes fill with tears at what has been made possible by each and every one of you who donated and helped to make this possible. The closing statement on the video says it all…

Walk for George 2011

If we had planned to walk on the warmest day of the year to date, we couldn’t have chosen a better Sunday morning than dawned on Sunday, 26th June. Those of us hardy (or is that foolhardy?) enough gathered at the Cumberland Obelisk by Savill Gardens, Windsor Great Park  at 11 am. Once the hugging and greeting of family and friends, some not seen for 12 months, was complete, catch up chatter and coffee consumed, we were off, maps in hand, taking a different course to that walked last year. Left behind were several family members, including my 85 year old mother, volunteering to watch the bags and paraphernalia too heavy or hot to carry. Last year, Mother had completed the walk with me; this year she thought the heat would be too much for her. A wise decision.

The path led us alongside the polo ground before dipping down towards the beautiful gardens and over a bridge and alongside the lake. Ducks and swans followed, seeking food, birds darted and sang overhead and squirrels flitted across the paths, shimming up tree trunks, tails swishing as they watched from branches overhead. The gardens and lakeside, a glorious riot of colour from rhododendrons and carpets of bluebells in springtime, were not so pretty this year to an artist’s eye but they were nonetheless magnificent in their green splendour, the trees provided much needed shade as the thermometer rose. In a quiet glade we came across a refreshment stand with seating where we readily stopped, treating ourselves to an ice-cream or lolly and a well-earned rest before continuing.

We took our time strolling along, a motley string of adults, children and dogs enjoying the sunshine and fresh air, taking turns to push George in his buggy (well, not the dogs, obviously). We stopped by the cascade, a cool respite, a good excuse for a photo shoot, before moving on to admire the ancient Roman ruins from Lepcis Magna in Tripoli. Onward and upward we trod our merry way. The chosen route had been on the flat but now the ground rose, the path steep in a long, hard slog uphill in the heat and I fell behind, stopping frequently to rest and catch my breath. Above the treeline I could see the monument. Almost there, I thought, and pushed myself on. Only to find it was the 100 ft totem pole; I still had another half mile to go. This was definitely further than last year. Ahh well, quick rest, deep breaths and move on.

At last, I reached the meeting point. The last one back, much to the relief of my worrying mother (she’s a fanatical worrier, my mother). The route had been approximately 6 miles; I don’t think at that point I could have walked another step and fell into a proffered chair in the shade in need of a large drink. My niece had the foresight the night before to make up a bottle of squash and put in the freezer. What a refreshing, welcome drink to this thirsty walker that was. Baskets at the ready, we enjoyed a smashing picnic, although in truth, it was far too hot to eat much. Afterwards, whilst us old ’uns rested and chatted, the children played football, cajoled adults to take them down to the water’s edge to catch tadpoles or, more importantly, join the queue for another ice-cream.

The day was a great success, enjoyed by everyone. Over £3,000 was raised on the day and that, along with other donations still coming in, we have enough money to cover all George’s Footsteps and Brainwave therapy up to the end of 2012, which is just fantastic. He would not be able to do this therapy without everyone’s committment and so for that his parents, family and George himself thank you so, so much!