By the time you read this, our little George will be in theatre undergoing his life-changing SDR surgery at St Louis Hospital, Missouri. He is only there thanks to every single one of you who has donated towards the £55,000 needed to send him and his parents across the Atlantic for this monumentous moment. Not only did we reach target, it was exceeded beyond all hopes to £80,000! This means the continued physio he will need as he grows will be paid for the next seven years and means for the first time in five years, his parents, Nicki and Gary, can sit back, relax and start really enjoying life with their son.
George’s surgeon has said George is very stiff in his legs but was pleased to see the movement George was capable of doing. He says surgery will really help George – he will be able to sit on a chair or stool, his scissoring will stop, his left arm will really improve and he will walk with a frame in all environments!!! He will need a wheelchair for distances but should be able to move on to sticks at some point. It’s truly amazing that all this can be achieved considering the prognosis when George was first diagnosed. He’s an amazing fighter, determined, cheeky, happy with an infectious laugh.
None of this would have been possible if it weren’t for the unstinted help people have given, the fundraising events: hair shaving, sky diving, bungee jumping, cake bakes, sponsored slim, mountain-climbing, marathons run, raffles, donations, fun days, picnics and boxing matches, cookery books sold, auctions and bike rides and much, much more to raise these funds.
There’s still a long way for him to go, and will be some weeks before he will be able to fly home and begin his new life. His classmates at school are all waiting for him to return, even the British Airways cabin crew fell in love with him and ensured George and his parents and a good flight and the captain has even put in a request to BA for the team to crew his flight home.
I am sure there will be huge celebration family party in his honour. I sincerely wish we could invite you all along to join in but I know your best wishes are with him.
I will keep you informed of his progress. Again, thank you all for your help. We couldn’t have done it for him without your support.
We love you, George. Good luck!
A full diary of events and sums raised can be found here.